My Nonprofit Reviews

Charcot-Marie-Tooth and my Family!

Charcot-Marie-Tooth is a relatively unknown disease, even though it’s the most common inherited nerve disorder affecting 1 in 2,500 people. CMT causes peripheral nerve degeneration, mobility impairments, and there is no cure.

My father suffered daily with CMT and is now living CMT free in heaven. Now my sister endures the same struggles with CMT. She has dedicated her life by working countless hours to raise funds for the 'biggest disease no one has ever heard of.”

Diagnosed with cancer at age 29 , she was given a chemotherapy which triggered this debilitating disease. Her legs are atrophied from the knees down and her hands are too weak to perform simple tasks we take for granted. She needs help buttoning a shirt, putting on jewelry, and requires leg braces to walk without falling.

I am committed to find a cure for this disease so my sister can live CMT free. I donate to the Hereditary Neuropathy Foundation (HNF) at www.hnf-cure.org.

HNF is dedicated to supporting those living with CMT by raising awareness and money to fund research for new treatments and a cure.