My Nonprofit Reviews

I was dismayed to see that there have recently been many negative reviews about CHSG on this site. Those reviews do not directly address the issue that those who were dissatisfied felt that way because CHSG is devoted to discussing treatment options that are based in scientifically sound research and not those that offer unproven and often false hope to sufferers. It is a feature of this disease that sufferers will seek any remedy at all, so it is natural that some people will take it very personally if their choices are questioned. However, that does not mean that a non-profit that is devoted to a medical issue should be required to entertain any option that someone brings up. That has the potential to become extremely dangerous, especially to such a vulnerable group of relief-seeking sufferers as us. Recently, someone who claimed to be a sufferer on the Facebook page said he was leaving the group because he "found the cure." One of the CHSG administrators posted very soon after that that this was a ruse to lead us to a website where the "cure" could be purchased. The sad reality is that THERE IS NO CURE. I am grateful that the leadership of the group is doing their best to keep snake oil salesmen away from us. They keep their heads even when we start to lose ours. I invite anyone on this site to read the negative reviews closely and take note of the consistent theme that the CHSG is a group that is closed to those who insist beyond reason that we all take their non-scientific and potentially dangerous viewpoints seriously. That is a universal positive, and as far as I'm concerned, those negative reviews read like 5-star reviews to me.