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Review for Amyloidosis Support Group, Inc., Wood Dale, IL, USA

Rating: 5 stars  

My brother is still walking and not in a wheelchair as well as a much better quality of life as a direct result of the assistance from Muriel Finkel of ASG. She works with hundreds of people and yet remembers us all and she remembered by brother after one meeting he attended. Thanks also go to Kay Rowley the ASG NW representative that got him to his first meeting. My brother is in a trial for ATTR and is now in the second phase. I go to all the meetings in the Northwest that are held in Seattle and Portland. Doctors from clinics and research facilities all over the US have taken the time and effort to come to us, via the ASG. It is hard to say no to Muriel! Thank God! Most of my family carry the mutation and our generation would not have had a chance without this organization: that gets people to the right doctors, gives info about drug trials, and keeps us abreast of new research and treatments globally. Their website is well set up and easy to follow. You get personal attention. Thanks to all who volunteer!

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