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Caren2

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4 reviews

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

My husband Charles Ganzert had a long battle with Multiple System Atrophy. He was diagnosed at the University of Michigan and they referred me to the Multiple System Atrophy Coalition for further information and support. The Coalition was an invaluable resource for information about this rare disease. They provide a website, phone support, and several online groups for patients, caregivers, family members, and ,finally , for widows and widowers. These groups introduced me to many people who were walking the same walk and could understand and truly help us survive this journey. Thank you to the wonderful staff and volunteers of the MSA Coalition!

Role:  Client Served
 

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

My husband Chuck was diagnosed with Multiple System Atrophy three years ago this month. We received only bits of information from our neurology/movement specialist so we have relied on the Coalition as a source of information, resource for finding help, and a lifeline of support from other patients and carers through online support supplied by the Coalition! Thank you for all you do every day!

Role:  Client Served
 

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

The MSA Coalition organizes support websites, fabulous fundraising events, opportunities to meet other patients and caregivers at informal gatherings, and both Local and International conferences with speakers familiar with research or symptom management ideas. They provide caregivers and patients with chances to meet doctors and researchers face to face. Since MSA is such a rare disease, patients and caregivers often need to provide their own training for the doctors and nurses they encounter. I don't know what my husband, who has MSA, and I , his full/time caregiver, would have done without the information to share regarding this rare and debilitating disease. The MSA Coalition and its many facets of support and information have given us a lifeline to hold on to and gain encouragement from!!! Thank you Coalition staff!

Role:  Client Served
 

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

My husband was diagnosed with MSA a year ago after 5 years of neurological problems. Our neurologist recommended the MSA coalition website. It has been our most important source of information and support! Thank you to the Staff of the Coalition for their many hours of effort to raise awareness and funds for this horrible disease.

Role:  Client Served