My Nonprofit Reviews

My daughter was diagnosed at 4 weeks with severe LM. No Dr's here could tell us or help us. They kept telling us to wait to see the ENT. This website has provided so much insight on everything. This was my main source to educate myself and others on LM. We had 2 supras done and she is now thriving. Our journey of LM is not over but I know I have a group of others to support me and understand me. That right there is the most powerful tool I could ever ask for. Thank you Stephanie and all the Coping with LM inc. team for answering so many questions and giving me support through our toughest battles.