My Nonprofit Reviews

I have had Cluster Headache Illness for 41 years and am treated by the US MD who 1st prescribed oxygen for CH. I chose the Cluster Headache Support Group for compelling reasons: it does NOT offer medical advice, it is administered carefully to promote personal experiences of sufferers and those who care for people with CH; further, it encourages mutual support and discussion that adhere to the mission of raising awareness and advocating for best patient treatment and care; finally, the group is compassionate, and accesses and shares freely a database of current best-practices (from credible sources) and guides, and visual links to cope with CH and raise prospects for improved treatment and reconignition as disease - it's not just a headache - by employers, insurance cos, medical providers, as well as friends and family. CH is a rare disease. Historically, its suffereres are under-recognized, their symptoms undiagnosed for years if not decades. The group better than any I have tried is finally bringing CH to light; thus, for the fitst time in 41 years of having CH I no longer feel alone. I am supported and I hope support others through this peerless organization.