My Nonprofit Reviews
Writer
Review for The Cluster Headache Support Group, Inc., Tucson, AZ, USA
A site that is supposed to be a "support" group doesn't do anything aside from supporting their own pockets with the money they draw through other suspect means. Mr President Chris Hannah has stolen CH websites, withheld CH research which was painstakingly gathered over years and years and suppresses freedom of speech on the CHSG Facebook page. Everyone is left to suffer with lots of well wishes. Its a shame that so many on that page will never experience what its like to be pain free while remaining uninformed. I urge them all to seek out other sources of information and do their own research rather than rely on these people.
As a responsible non-profit organization, we do not promote or permit discussion of illegal substances and self-medicating on our sites. Unfortunately, this position has evoked some attempts by devotees or dealers to defame us with lies like the ones in this review. I'm not even sure how you would "steal a website" and CHSG is staffed 100% through volunteer efforts. Our research portal is a linkage to our partner PatientsLikeMe, an excellent condition tracking app that benefits the community at large through better data about Cluster Headaches. Although we find attempts like this reviewer to defame egregious toward CHSG and toward progress with new treatments, it is an unfortunate element on the Internet.
