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fargo49

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6 reviews

Review for Medshadow Foundation, New York, NY, USA

Rating: 5 stars  

The information that MedShadow Foundation offers is complete, concise and very helpful. I learned so much about the treatment options for a family member’s recent diagnosis of multiple sclerosis. I was able to listen and to respond knowledgeably as she considered which pharmaceutical protocol to choose now, knowing this is a lifelong disease. MedShadow Foundation is a wonderful resource for both of us.

Role:  Board Member
 

Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

For over 40 years DES Action USA has been the one consistent source of helpful information about all my health concerns as a DES Daughter. DES Action has always been in communication with the research community to bring the latest studies in understandable language to its members and the public. The work of DES Action continues to be needed by me and all the generations affected diethylstilbestrol.

Role:  Volunteer
 

Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

DES Action USA has been a part of my life for over 40 years, almost as long as I have known that I was prenatally exposed to diethylstilbestrol. This organization has been at the forefront of finding and sharing important health information to and for the millions of individuals affected by this drug. DES Action continues to be tireless in advocating for research and communication about the health of the generations exposed to DES.

Role:  Volunteer
 

Review for Medshadow Foundation, New York, NY, USA

Rating: 5 stars  

MedShadow Foundation is an outstanding resource for health information. I have used this site extensively for a variety of health questions for my family. I trust the unbiased and complete health information offered here. As a board member, I'm proud of MedShadow Foundation, knowing that all the information available fully serves public health and well-being.

Role:  Board Member
 

Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

DES Action USA provides the most complete information about the adverse health effects of prenatal and generational exposure to diethylstilbestrol (DES). I have counted on DES Action for almost 40 years as the most reliable source of health information for me, my brother and my nieces.

Role:  Donor
 

Review for DES Action USA, New York, NY, USA

Rating: 5 stars  

For over 35 years DES Action USA has been the consistent and reliable source of health information and research findings for those of us are DES-exposed.

Both my brother and I were prenatally exposed to DES; my brother's two daughters are the next generation for whom we await research outcomes. Without DES Action we would have little or no chance to learn about the on-going DES research within the National Institutes of Health by the National Cancer Institute and the National Institute of Environmental Health Sciences.

Beyond advocacy for research and public health education, DES Action USA offers a forum for sharing our experiences with our peers about our DES-related adverse health and reproductive problems. For many of us this is the first opportunity to share our experiences.

We cannot change or cure our DES-exposure, but because of DES Action USA we will not be a forgotten pharmaceutical disaster.

Role:  Former staff