My Nonprofit Reviews

AR00082
127 profile views
1 reviews
Review for Pandora Org, Traverse City, MI, USA
I am an ME patient and applaud Pandoras participation in the IOM contract which resulted in a positive outcome with the hallmark of the condition , post exertion neuroimmune exhaustion being highlighted as a principle diagnosic critera . Pandora actively spoke for the patient community , presenting patient experience and research for the panel to include in their scientific research review . I am very appreciative to the organisation for devoting their time to representing the patient community as I personally do not have the energy to consistently participate in advocacy myself .
Role: Client Served