My Nonprofit Reviews

7 years ago one of my four children got his Diagnosis of FSH. I was stunned, confused, not educated. Through the FSH Society I learned more from the information provided than even his doctors could provide. Since his DX I learned that I too have it and two more of my kids have clinical signs. I use their website very frequently and print out information to give to our doctors to help them manage us. Other education materials they have I also shared with family and friends to help them understand our pain and limitations. I have met other patients and developed rich and special bonds with them. I would have never had my DX as i don't have the "classic symptoms" as my child does. It was with what i learned from them that helped me understand my own pain. The newsletters they put out I have copies of them all with me when I see new people. This organization has helped me more than I could ever say. I am so grateful for this life line. Thank you FSH Society for all you have done for bringing me some comfort as my family deals with this disabling disease.