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mary1959

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1 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

My brother,Bob was diagnosed with Barth Sydrome about 12 years ago.i reached out to Shelley Bowen,and she immediately returned my call.I don't remember everything but i did learn more about barth syndrome. My grandson was born in September 2008 and was diagnosed with Barth Sydrome in January of 2009.My grandson got the gift of life by having a heart transplant at the ageof 11 months.. We were told without a heart transplant byhis 1st Birthday, he may not live much past that. This was my witnees of a miracle, and I thank this organization for saving lives. Mary Klein

Role:  General Member of the Public