My Nonprofit Reviews

CHSG is a caring, supportive and informative organization. They always have up-to-date information to share and keep the members informed of any trials that are recruiting. The redesigned website is packed full of useful information and clearly states the mission.

I have been a member for several years. I found the non profit when I was searching for answers and desperate for help. These TAC's are known as suicide headaches and I see this non profit support and educate so many who are feeling as desperate as I was originally. Up to date, current medical trials, research and scientific based information can always be found on the site. I learned of the latest ATI neurostimulation trial though CHSG and am now an implant recipient, helping future cluster patients by tracking and sharing my data. I have been a volunteer administrator for a few years, The caring and knowledge of the all volunteer admin team is vast, They will readily support and member while sharing a particular study link to help them member get the correct information. The members will surround, support and lift up fellow members though the rough times as celebrate the victories as well.

The support and freely shared information is a life saver for me. There is help around the clock from around the world. It is a safe place to be when your world revolves around chronic pain.

This organization is cluster patient oriented and freely shares the latest research and research opportunities. Oxygen masks are offered at a discounted rate and they help with getting people mental health assistance at a discounted rate. They provide support via a webpage and facebook, which allows them to reach many cluster patients world wide.

I have chronic cluster headache and while looking for information I found this support group. The knowledge, information and support so freely shared has helped me find treatment options that are working. I see the group helping so many on a daily basis. These are nicknamed suicide headaches and I know chsg will personally reach out if someone is in crisis. Spreading awareness about a rare neurological issue is vital to getting better treatments and more research, which I see as a large goal of this non profit. I have been a member for over a year now.