My Nonprofit Reviews

I've lived with CH for over 17 years and always felt alone. My neurologist recommend this support group and I'm so glad he did. I know I always have someone there no matter what time of day or night, who understands exactly what I'm going through. Massive thanks to Chris & all the admin

I was diagnosed with this horrific condition 11 years ago after suffering with them for about 6 years prior to that. I have always felt as if I was alone as it's not a condition that is widely known about. My wonderful neurologist happened to mention the page during a consultation about 6 months ago & I can honestly say that joining has been the best thing I have ever done. There are members from all over the world who you can talk to at all hours of the day & night. These are people who just get it. You don't need to explain anything; you know they understand exactly what you're talking about. Unfortunately a bi-product of this condition is depression; something I have lived with for a long time. At the moment my depression is quite severe & had it not been for some fantastic members of this group, I would not be writing this today. I had had enough of all the pain, lack of sleep, mood swings etc & had lined up my medication in preparation. I decided to take one last look at my Facebook and wrote a post about how my fight had ended. People from all over the world, who have no idea who I am, or what my story is, sent me private messages to try & help me through it. They did. They were more helpful than my crisis team have ever been because they get it.