My Nonprofit Reviews

NinaBDRC - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

NinaBDRC

324 profile views
1 reviews

Review for Association Of Birth Defect Children, Inc. dba Birth Defect Research for Children, Orlando, FL, USA

Rating: 5 stars  

I first discovered Birth Defect Research for Children (BDRC) after the birth of my second daughter who was born with multiple birth defects. I was initially shocked and devastated; I couldn’t believe it happened to me and my child. What tormented me the most was that I did not know the cause of her birth defects and whether they could have been prevented. It was through searching for the cause of my daughter’s birth defects that I discovered BDRC. I was quite relieved to know that my daughter’s birth defects and my pre-natal exposures were being documented in their National Birth Defect Registry which monitors patterns and links to the causes of birth defects. BDRC also gave me helpful information about my daughter's condition and matched me with other parents who had children with similar birth defects. Their services were exactly what I needed at the time. When I was preparing for my daughter’s heart surgery, it was comforting to speak with other parents who had survived the same experience.

What I've enjoyed the most about my experience with this nonprofit is...

knowing that my daughter's birth defect was registered in the National Birth Defect Registry.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

Role:  Client Served & registered in the National Birth Defect Registry and participated in the Parent Matching Program.