My Nonprofit Reviews

I am a DES son. Here are the benefits listed on the website of being a member:

BENEFITS OF MEMBERSHIP

DES ACTION VOICE NEWSLETTER
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The DES Action VOICE newsletter keeps members current on the latest research and provides reviews of pertinent books and articles. This respected publication, which goes out four times a year, is a “must read” for those wishing to stay informed about DES issues, including clinical, research and legal matters.

DES DAUGHTER ONLINE SUPPORT GROUP LISTSERV
This is a popular Member Benefit specifically for DES Daughters. The group connects them via email messages on a safe, secure and private system. We share ideas, suggestions and support regarding the very personal matters that come up for DES Daughters.
There is something wonderful knowing others are dealing with the same issues and concerns. We learn from each other. To join this listserv, first join DES Action USA.

DES DAUGHTER TOOLKIT
Here is an invaluable resource to help empower DES Daughters to better communicate with their doctors and advocate for the health care they need.
Too many doctors either don’t know about DES exposure or have failed to keep up with the latest research. The DES Daughter TOOLKIT provides important DES information in a user-friendly format for doctors. It’s all available here on this website, but by combining it in one document the messages about increased medical risks and proper screenings are readily conveyed.
It empowers DES Daughters. Hand the TOOLKIT to your health care provider and it does the explaining about DES for you!

ADVOCATE FOR CONTINUED DES RESEARCH
You can’t do it by yourself – but together we can. Without DES Action’s push for research and advocacy for continued funding, it would not have happened.
DES Action stays in touch with scientists about their DES studies and keeps them aware of health issues being experienced by those of us who were exposed to DES.

SUPPORT DES ACTION
By doing so you join thousands of individuals who recognize the importance of having a powerful voice for the DES community. In return, you stay informed and feel good about supporting an important cause.
No one else will do it for us.


This group claims to be an advocate for those exposed but cannot list one benefit of membership for DES sons. When I sent them a letter in 2002 asking them to refer me to a doctor they replied that there are none capable of treating me. When I sent them an email in 2012 with the same request I got the same answer. In other words they have done absolutely nothing for DES sons in the past ten years...