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Courtenay

188 profile views
2 reviews

Review for Cure JM Foundation, Leesburg, VA, USA

Rating: 5 stars  

Attended the 2016 CureJM National Conference and it was awesome. It was the first time my 6 year old JM child has ever me someone with the same disease. There were so many opportunities for medial updates and questions - completely invaluable. I came hope feeling validated and with direction as to what changes we needed to make in regards to her medical care. So thankful for this organization!!

Role:  General Member of the Public
 

Review for Cure JM Foundation, Leesburg, VA, USA

Rating: 5 stars  

CureJM brought us HOPE during the scariest time in our lives, JDM diagnosis. Attending a conference was THE BEST decision I made. It instantly connected me with other families that unserstood exactly what we were going through. More importantly, I walked away armed with valuable information that helped me make more informed decisions regarding my daughters care. It allows me to breathe knowing that we have determined smart parents and researchers fighting for a cure. Thank God for CurejM!!

Role:  Volunteer