My Nonprofit Reviews

My name is Amy, and my husband Todd and I have three children- Caitlyn, Christian, and Caleb. Todd was diagnosed with ALS on August 9, 2013, and we have been fighting as a family since 2008 when the symptoms first began.

How this has impacted our lives has knocked us to our knees. At the beginning we were so overwhelmed, we didn’t know what to do or what to think. Then we put our positive thoughts, our hope, and our belief that one day, and one day very soon, there would be a cure and a miracle placed not only on our family but upon the thousands of families that fight ALS every single day.

My daughter Caitlyn is 9, and I wanted her to say to say a few words on how ALS has impacted not only her, but her two brothers:
“Well my dad used to tell us stories and talk to us, but ALS has taken away his voice, which will come back I know. And no matter what ALS does to my dad, he will still be the same funny guy we know. We just have to stay strong and believe that miracles and a cure will come.”

ALS Worldwide was the organization that reached out to us at the beginning when we were in a whirlwind. We had no idea what to do, what ALS was. The only thing we were hearing from neurologists was, “I’m so sorry, this is a terminal illness and there is no cure.” Steve Byer reached out to us, and got on weekly Skype calls to answer all of our questions, and gave us so much hope and information on so many things that we could do to try and keep Todd as strong as we can. We’ve followed his advice, and we will continue to do that.