My Nonprofit Reviews

I live in Durban, South Africa with my husband Charles and our four children. I was diagnosed with ALS/MND in February 2014, after undergoing numerous tests that eventually lead to this diagnosis. Understandably it was a great shock for the entire family and has impacted our daily lives quite considerably.

I am fortunate enough that my symptoms have started in my legs, and at the moment I’m feeling weakness in my back which is affecting my day-to-day mobility and the ability for me to do normal day-to-day tasks. I am very lucky that I have an extremely supportive family who have gone through this journey with me and supported me with love and caring.

We have found it extremely difficult in South Africa to find medical help as not much is known about the condition in South Africa. Very luckily for us, just going through the internet, we managed to find ALS Worldwide, who have been incredible in their support, their empathy, their caring, and their information in terms of possible medications that could help us. More than anything, we feel extremely grateful for the fact that they have given us hope.

At this stage we are feeling very positive with the route we are taking in terms of treatments. So far we are doing pretty well. We do appeal to you to support ALS Worldwide as there is no other organization who offers this kind of support to families in our situation who are desperately looking for some kind of light at the end of the tunnel, and to stay as positive as possible and that is the incredible support we have got from Stephen, Barbara, and Sarah. They have been unbelievable and unstinting in their support. We Skype with them once a month and have found them unbelievable in their help and their caring for us.