My Nonprofit Reviews

I reached out to ALS Worldwide when I was first diagnosed with ALS almost four and a half years ago. Admittedly I was looking for anyone that could help me and I had no idea what, if anything, I could expect from ALS Worldwide. Not only did I get a response to my questions, but Stephen Byer set up a personal Skype session with me where we discussed my health and possible treatment options available to me. Since that day Steve, his wife Barbara, and the staff at ALS Worldwide have provided invaluable support and countless hours of personalized advice and have never asked for compensation of any kind. While I know they provide support to hundreds if not thousands of PALS, they always make me feel like I am special. Their positive and hopeful attitude is a welcome change to what PALS typically experienced. Four plus years into this disease and I am still leading a fairly independent life full of hope and optimism about the future. I cannot imagine where I would be if not for the good people at ALS Worldwide and I am truly grateful for all the help they have provided and continue to provide to me.

Hi, my name is Keith Johnson from Pineville, Louisiana, and I was diagnosed with ALS a little over two years ago in November of 2012. When I first got this news I was devastated. The doctor told me I had two to five years to live, during which time I would become completely paralyzed, not being able to speak, eat, or eventually to even breath. I was immediately concerned for my family, wondering what kind of burden I would become to them

I’m now more optimistic than I’ve ever been about the future. Part of the reason for my optimism is my association with ALS Worldwide. Early on in my battle with ALS, I was searching the internet for treatment options and I ran across their website which had information that I was curious about. I sent an email to Stephen Byer, not really thinking I would ever get a response. Not only did I get a response, but he set up a Skype video call with me and talked to me about my health, when I was diagnosed, what I was doing treatment wise, and just provided someone to talk to that completely understood what I was going through.