My Nonprofit Reviews

My wife Toni and I received my ALS diagnosis in October of 2011. Along with that news, our neurologist (at the time) was less than encouraging with statements like “If you want to travel anywhere, you’d better do it now.” We spent the next few months in a tailspin as we quickly learned that resources for people in our situation were, at best, very limited.

Finally, after countless hours of scouring the barren desert of ALS information, Toni found the oasis…Steve & Barbara Byer / ALSWW.

It was a joyous day on March 29, 2012 when Toni “encouraged” me to participate in that first Skype call with Mr. Byer. Since that time there have been numerous calls and emails where we’ve received information, advice and encouragement. Although my ALS has progressed, we are confident that the advice and involvement in various drug trials have given us many more quality days than we would have otherwise had. With that being said, the greatest gift we’ve received from Steve & Barbara is HOPE.

Many, many thanks to ALSWW for being our trusted advisor on this journey.