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Team Hope

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Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

This is why our family volunteers as WALK Chairs for the WNY Hydrocephalus Association WALK. Joining other families with the same find a cure and raise Hydrocephalus Awareness.
Our family and the Hydrocephalus Association supports Baby HOPE's Journey to find a cure for Hydrocephalus. Hope is the twin daughter of Kelly McKenzie and Corey Zientara
At 4 weeks old Hope was admitted to the Pediatric ICU at Childrens Hospital due to cardiac arrest. Several issues arose because of the stress and trauma she went through. Hope spent over a month in the hospital fighting to recover. One of the results Hope endured due to cardiac arrest was a condition called Obstructive Hydrocephalus. Hydrocephalus is an abnormal accumulation of fluid-cerebrospinal fluid or CSF- within cavities called ventricles inside the brain. To treat this Hope had to have surgery in which a shunt was placed. A shunt channels the flow of fluid away from the brain and into another part of the body where the fluid can be reabsorbed and transported to the bloodstream. Unlike many surgical procedures that can cure a condition, the placement of a shunt does not cure Hydrocephalus, it only helps to control it. Hydrocephalus is a lifelong condition that requires long term medical care and usually future surgeries to revise the shunt to ensure functionality. Though it has been a long hard road her journey is far from over but she has proved that she is a Fighter!
Life is short and it can change in an instant so Believe in miracles because Hope is proof they exist.
Learn from yesterday, Live for today, and ALWAYS HOPE for tomorrow!
Support The Hydrocephalus Association and Join a WALK in your area or become an advocate to help us find a cure!

Role:  Volunteer