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Jan_60

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1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

The Autoinflammatory Alliance is a great, informative resource for families dealing with these horrific diseases. My son has NOMID and being able to talk to other families dealing with the same issues has helped me cope through the years. It also helps my son, who has had his share of suffering to meet other NOMID people and hear their stories. The brochures are very informative and I have passed them out to doctors as well other medical professionals. Karen Durrant, the president of the Autoinflammatory Alliance is the most amazing, knowledgeable person, who unselfishly takes the time to deal on so many levels with these diseases. We are so lucky to have her and this wonderful organization.

Role:  Client Served