My Nonprofit Reviews

Global Genes is that rare mix of news and technical expertise that manages to communicate equally well to the general public as well as the scientific community. Its Rare Disease Toolkit is one of the best I've seen put together by an organization to help navigate unchartered waters for the newly diagnosed. The organization's advocacy efforts for patients and clinicians is terrific and Global Genes does an excellent job of helping the conversation between those groups begin and flourish. The website designed and maintained by Global Genes is a godsend, featuring webinars, documentaries, facts, resources and now a daily publication. I would recommend this group's work and efforts to anyone interested in learning, sharing and understanding more about the Rare Disease community.