My Nonprofit Reviews
Jodi26
Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA
I am 42 years old. Growing up my doctors suspected I had DBA, but I wasn't officially diagnosed until I became weekly blood transfusion dependent, almost four years ago. I felt so alone with this disease and then I found the DBA Foundation website. I soon learned that I was not in this fight alone! The foundation has given me so many things, information, contacts, support, and most of all the people I have talked to who have (and still do) supported me with their prayers, thoughts, encouragement. I know after talking for hours to Dawn that we are all one big DBA family. She gave me badly needed information so I could make a major life decision and I will always be grateful.
I have been through 2 bone marrow stem cell transplants and the DBA Foundation gave me the support I so desperately needed! I will never be able to express my appreciation.
Jodi