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Huntersmom

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1 reviews

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

My son has DBA and when he was born 10 years ago, there was a lot of dated information on the internet. It was scary for me as a parent, trying to find out as much information as I could about DBA and not knowing that the information I was reading was no longer accurate. When I found the DBA Foundation, not only did they comfort me, but they gave me the facts at that time and continue to keep me informed on new developments in our fight for DBA. That results on me being able to forward that information to my son's doctors, which helps them out because this disorder is so rare. I am a better educated parent because of the DBA Foundation which in turn allows me to be more active in the treatment for my son. I also love that it didn't matter that we are from a different country, I feel they are always there for me when I have questions or need support. So grateful for them.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Role:  Client Served