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janetgp

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3 reviews

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

We are so thankful for the DBA foundation. The Executive director, is always readily available to help with any and all questions that we have pertaining to Diamond Blackfan Anemia. In addition, the work they do to fund and support ongoing research is just incredible. Wish I could give 10 stars

Role:  Client Served
 

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

AMAZING. Being diagnosed with a rare disorder was overwhelming to say the least. I felt lost and scared and terribly alone but after finding the DBAF I felt a huge sense of relief come over me. I can’t even really explain the feeling but just knowing they were there To help, support , and explain made the world of difference. Not sure where I would be in this journey without them.

Role:  Client Served
 

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

I don't know where my family would be without the DBA Foundation. Dawn (The Executive Director) has be instrumental in providing our family with ongoing support. Her knowledge and expertise in the field of Diamond Blackfan Anemia has made her my number one "Go To Person" when i need reliable and accurate information. Without the foundation many families would be missing out on vital and up to date info.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Role:  Client Served