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Tommie W.

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2 reviews

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

My son has Diamond-Blackfan Anemia and I cannot imagine how would have ever made it through all of the hard decisions without the support, education, and compassion this organization provides.

Role:  Client Served
 

Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA

Rating: 5 stars  

The Diamond Blackfan Anemia Foundation has touched my life in so many ways. When your child is diagnosed with something that is not only rare but has a wide spectrum of effects on their health and their life, a foundation such as the DBAF becomes your lifeline. It is filled with resources that help you insure your child is receiving the best care possible. It gives you the support that can only come from others who truly know what you are going through. Education is power and this foundation offers current and accurate information through newsletters, Facebook support groups, and educational camps. The people who serve on the board of directors have a heart for the research this foundation helps fund. I am not sure where I would be emotionally without this foundation but I know that my son would not be as healthy as he is without all of the support I have received. This foundation has helped him to not only survive his DBA but to thrive. I am forever grateful for Dawn Baumgardner and her tireless efforts.

Role:  Client Served