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Andrea117

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1 reviews

Review for International Rett Syndrome Association, Cincinnati, OH, USA

Rating: 5 stars  

I am a mother of an 11 year old girl with Rett Syndrome. When my family and I received our daughters diagnosis we were devastated. However, thankfully because of Rettsyndrome.org (IRSF), we were able to get in contact with other Rett parents and caring people who understood what we were going through. Since making contact with many families, we know that we are never alone and know there are many, many people who are out there to help, listen and fight for our girls!
I have been so inspired by families I have grown to know and love that I decided to chair my first CT Strollathon (one of an amazing fundraiser for rettsyndrome.org) this year. It was one of the most memorable and heartwarming experiences of my life. We know that with the help and commitment of rettsyndrome.org and the fight, strength and will of our Rett girls, we can conquer Rett Syndrome once and for all!!

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