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Review for International Rett Syndrome Association, Cincinnati, OH, USA

Rating: 5 stars  

Our ten year old daughter was diagnosed with Rett syndrome in 2006. Within days of her diagnosis, the International Rett Syndrome Foundation was there, with information about the diagnosis, about therapies and research, and connecting us with other families. The International Rett Syndrome Foundation funds cutting-edge research, from basic science to clinical trials. But it also does so much more than that. It educates and empowers families with the information to make the best decisions about their daughters' care, education, and happiness.

Role:  Client Served