My Nonprofit Reviews

My daughter wouldn't be alive if it were not for the tireless efforts of The Diamond Blackfan Anemia Foundation's (DBAF) president, board members, and the teams of doctors with whom the DBAF has partnered. This very small nonprofit of an extremely rare bone marrow failure syndrome, DBA, has DIRECTLY improved the health of people with DBA. The DBAF can change lives because of its excellent management by Dawn Baumgardner, and because of great efforts by the DBAF scientific advisory board. DBAF funds are prudently used for grants and studies which have changed the outcome of how patients are clinically treated!! How often can a donation truly change the life of a person!? During our biennial meetings, parents and patients have the opportunity to met with and learn from scientific investigators and doctors who have used donations to the DBAF to improve the lives of people with DBA. So few investigators or doctors are able to truly change the course of a persons life, and because of the DBAF's funding they have done just that. As a monthly donor to the DBAF, I'm confident that my donation is truly helping to improve and save the lives of people with Diamond Blackfan Anemia. Thank you to all of the people who have worked and given yourselves to the Diamond Blackfan Anemia Foundation. I also thank those of you who choose to donate to this exceptional organization!

The Diamond Blackfan Anemia Foundation (DBAF) has played a critical role for keeping my daughter who has DBA, "alive" and well. Without the DBAF, I'm certain that my daughter would not be doing as well as she has been. The DBAF has guided us about: specific treatments, procedures, my daughter's kidney failure. They provide information to the patients and families about the importance of staying vigilant and compliant with medications, lab work, and imaging protocol. This information that is provided to parents and patients is offered because of research that the DBAF has been responsible for seeking out and funding. Treatment and prevention of the potential deadly effects of DBA are consistently being improved specifically because of the role of Ms. Baumgardner (the DBAF president) and the DBAF. We are given information to take to our hematologist so that they can be educated on the latest protocols. The DBAF is saving lives by reaching out to educate and provide much needed support to the DBA community. I'm am indebted to the DBAF for educating me on how to be advocate for my daughter and how to keep her as healthy as possible.