My Nonprofit Reviews

We as a family owe the Diamond Blackfan Anemia Foundation a great debt of gratitude for the lives of our sons. The DBAF’s Executive Director, Dawn Baumgardner, is the founder of the DBAF as well as its heart and soul. She is the source of updated information and infinite comfort to the families; she is the encourager of researchers and the voice of the families to them. She has personally counseled us, encouraged us, cried with us and sternly advises us when she knew we were going down the wrong medical path for our sons. Dawn leads the Foundation with the total passion and dedication that only a mother who has two sons afflicted with DBA could have. I shudder to think what the fate or our boys would be without her.

The Diamond Blackfan Anemia Foundation has literally saved our sons lives . The Executive Director, Ms. Baumgardner, stays up to the minute on protocols, research and treatments and it is only through her encouragement that we dug further into our boys ferritin levels and found that they were at life threatening levels. She has also been the voice of calm, encouragement, support and solid information at the end of the phone for us as well as any family member who calls her - from any where in the world and at any moment they need support. The Foundation also collaborates with and funds the research of the top researchers world wide. The Foundation is also made even better by a brilliant and highly principled Medical research consultant. This Foundation is the backbone of DBA family support, information and research funding.