My Nonprofit Reviews
Louise D.
Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA
My world could not exist without this organization. My step-son 28 has DBA, he came into my life in 2000. In a day that facebook was not around and connecting with others was the old fashion way.
The DBA Foundation provides amazing connections, patient advocacy, spearhead of many medical initiative and research.
Honestly, there is to much to say for this foundation.
Review for Diamond Blackfan Anemia Foundation, West Seneca, NY, USA
DBAF is a crucial support for many families and patients alike. The research that has been funded through this small yet powerful organization has been extensive and well serving. The borders of DBAF go beyond the USA, hosting a jam packed week every two years of information, researchers, families and the foreront Medical team is invaluable. As well, bringing leading Hemotologist together every 2 years to discuss current research, networking and brainstorming in the field of Diamond Blackfan Anemia. We look foward to DBAF's continiued works in the support of families, education and progress in finding a cure. Well Done!
More Feedback
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014