My Nonprofit Reviews

rich.haaland
Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA
I've known about the CdLS Foundation since my brother passed away many years ago from complications due to CdLS. I've had the privilege in recent years to serve the Foundation as a Board Member and part of the Research Committee and I am consistently amazed at the ability of the Foundation staff to drop everything to address the needs of those families affected by CdLS. I've consistently seen staff who know the face, name and needs of each family member affected by CdLS. In recent years the Foundation has continued to amaze me by their desire to strive to ensure each person affected by CdLS receives the highest level of care possible. Keep up the wonderful work!