My Nonprofit Reviews

GHF is a non profit whose goal is to spread awareness about Hydranencephaly and they do exactly that and more. My daughter had an in-utero diagnosis and was born with Hydranencephaly. The information that I found was grim at best and heartbreaking. I started finding other families that had children with this diagnosis and began to have hope but there was not a lot of information available. Global Hydranencephaly Foundation started to form shortly before my daughter passed away at the age of 2. I have seen this foundation grow and help so many families, old and new. They are working to change the way that medical professionals view Hydranencephaly so that new families have support, correct information and hope. The support from this amazing group of people never ends. Every Angel is constantly remembered and Angel Parents give families advice and talk about their experience. I was lucky enough to attend the first ever Global Hydranencephaly Foundation conference as an Angel Mom and it was like going to a family reunion. Hydranencephaly families are so incredibly knowledgeable and supportive of one another and always looking for new ways to help other families. I am proud to be a volunteer for this incredible foundation!