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griffingunforge

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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

This organization is the only place families can get good, useable information on this genetic syndrome to present to physicians and friends/family. They also offer a parent-to-parent forum where families can ask questions of each other, celebrate their children, or just vent. I appreciate the work this organization has put into making families feel connected and informed.

Role:  Client Served