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jenmhaze

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1 reviews

Review for International FPIES Association (I-FPIES) , Point Pleasant, NJ, USA

Rating: 5 stars  

This organization has been a source of information, strength, and sanity for my family! My nephew has FPIES, as a result my sister and brother in law found themselves in an unknown world where even the best doctors had little helpful advice to offer. Finding other parents and friends who could understand and relate to what they deal with on a daily basis has been incredibly helpful for everyone. With this rare disease, parents are often far more the "experts" than the medical community and having a place to ask questions and receive advice is invaluable. Highly recommend!!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Volunteer