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Dru S.

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1 reviews

Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 5 stars  

We adopted our son, Logan, as a newborn with hydranencephaly. We had never heard of it before, but because Logan is now 14 years old, we have lots of experience. We love being able to learn from others as well as share our experiences with new parents who have recently heard of hydranencephaly for the first time. I can't begin to express how much it means to us to be able to stay in touch with other families who are dealing with the same problems and prognosis that we deal with every day. It's good to know that you're not alone!

Role:  Volunteer