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Theresa49

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1 reviews

Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 5 stars  

My nephew, Jayden, was diagnosed with Hydranencephaly and Macroencephaly shortly after birth in Harare, Zimbabwe. For anyone, this is a difficult diagnosis to understand and accept and we were advised by his doctors to "just ignore him till he dies as he will be nothing more than an irritant in our lives"!!! This is a baby! A life, that we were blessed to be given to look after. We had little help with knowledge and no support until we came across the Global Hydranencephaly Foundation. They have reached across the ocean between us to support us in every way possible and given us hope and sent gifts for Jaydens special needs whenever possible. For example, Jayden will be asleep and suddenly jerk awake unless we physically held him close whenever he slept, and th Global Hydranencephaly Foundation suggested we get a weighted blanket for him... wait, a what? We had never heard of such an item and things like this are not available in Zimbabwe. After we requested a pattern to make one for Jayden, the GHF sent us a weighted blanket through the post, which has really helped. We have received a few other items from them as well. Please support this amazing non-profit so they can assist families WORLDWIDE just like us.

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