My Nonprofit Reviews
Emily96
Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA
My daughter was diagnosed with Dilated Cardiomyopathy at 7 months old in 2003. I instantly jumped on the Internet to get as much information as possible. CCF immediately caught my attention. At the time I signed up it was very new, really just in its infancy. But, already chock full of information. As my daughter waited for her transplant I would go back again and again to check up on what was happening. They have been with us every step of the way including the time of great sadness for our family as Aryanna lost her fight August 31, 2014. CCF is still in our corner being part of our support system as we navigate this new path. And, as we check every two years on her brother we hold our breath that he will escape this dreaded disease, but knowing we have someone in our corner no matter what the future holds for our family.