My Nonprofit Reviews

As a Registered Nurse I've always known about cardiomyopathy. I didn't become familiar with pediatric Cardiomyopathy until my great niece was diagnosed at age 12 with dilated cardiomyopathy, and placed on the transplant list. I found the Children's Cardiomyopathy Foundation has a wealth of information for all people for all types of cardiomyopathy. The foundation has and is helping push through legislation, state by state, to help decrease sudden death in our school aged children. Helping to teach people of all ages about AEDs. How to locate them and more importantly how to use them. I cannot say enough about how important this foundation has been to me and my family personally but to all families dealing with this devastating cardiovascular illness.On a more personal note, my great niece received her gift of life after being on the list for 800+ days and is doing fantastic!!!