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Gayhan5252

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1 reviews

Review for Oxalosis and Hyperoxaluria Foundation, New Paltz, NY, USA

Rating: 5 stars  

My son was diagnosed in1987 when no one knew anything about the disorder. The doctors encouraged me to call OHF I did and I have spent hours on the phone with the staff telling me what we needed to do and telling me to be an advocate for my son Joshua. I have learned so much from them and they have always been there for us. I lost my son a little over a year ago but still stay involved with OHF because these people mean so much to me and I do believe one day there will be a cure.

Role:  Volunteer