My Nonprofit Reviews

Gayhan5252
184 profile views
1 reviews
Review for Oxalosis and Hyperoxaluria Foundation, New Paltz, NY, USA
My son was diagnosed in1987 when no one knew anything about the disorder. The doctors encouraged me to call OHF I did and I have spent hours on the phone with the staff telling me what we needed to do and telling me to be an advocate for my son Joshua. I have learned so much from them and they have always been there for us. I lost my son a little over a year ago but still stay involved with OHF because these people mean so much to me and I do believe one day there will be a cure.
Role: Volunteer