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Connie46

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1 reviews

Review for International Rett Syndrome Foundation (IRSF), Cincinnati, OH, USA

Rating: 5 stars  

This organization does it all - family support via internet, social media, yearly conferences, professional medical experts doing vetting to get the best possible therapies for our kids - one on one support for new parents - webinars on new technology. When it is hard to keep up with the ever changing Techo world - IRSF is doing it for parents, providers, educators and anyone else who is touched by our Rett kids!!

Role:  Volunteer