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DanielW

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1 reviews

Review for International Rett Syndrome Association, Cincinnati, OH, USA

Rating: 5 stars  

Truly the leading Rett Syndrome organization in the market. They just rebranded as rettsyndrome.org and updated their website so folks like rgoodman (Comment on this page) can find the info they need. This organization leads the right approach to treatments, studies, and research for rett syndrome. This non profit was there for my family when our daughter was diagnosed.

Role:  Volunteer