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Elizabeth155

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1 reviews

Review for Oxalosis and Hyperoxaluria Foundation, New Paltz, NY, USA

Rating: 5 stars  

OHF is a wonderful small non-profit organization that provides guidance, awareness, information and research dollars to PH patients and information to their family and friends. I am personally involved with three beautiful children who suffer from this rare generic disease. I am so happy there is an organization out there that is so so knowledgable on information regarding Hyperoxaluria especially after learning that many doctors know little about this rare disease. I am so glad OHF is out there to refer my family and friends to for information.

If I had to make changes to this organization, I would...

none I can think of at this time except to make people aware of what they do through postings and Ads in publications.

When was your last experience with this nonprofit?

2014

Role:  General Member of the Public