My Nonprofit Reviews

I don't know where we would be right now without the FSH Society. My husband was diagnosed with FSH Muscular Dystrophy about a year and a half ago....I was devastated and lost until I found them on the web. Their website was so friendly and so helpful to me it directed me to a page for community support. Right then and there I was able to get a phone number of someone I could talk to about living with FSHD and ask questions about how family members can support him . I was quickly put in contact with a male of the same age as my husband with very similar progression of the muscle weakening patterns. June Kinoshita was beyond helpful with her time and her empathy. After a few conversations and contacts I was able to think more clearly about what all of this diagnosis meant to us. I was also invited to join a facebook group which has been enlightening for me to learn so much for a beautiful group of members suffering from the same life changing disease. This nonprofit works so hard to make a difference for those afflicted. So many suffer and it would be so nice to have a cure.
I look to the FSH Society to research, speak up for, inform all of it's members as to new studies and findings (as they do so well). I have so much confidence in them and their urgent activity to find a cure. I really really really do not know what I would do without the professionalism of the FSH Society and my contact person June Kinoshita.
JVisco

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