My Nonprofit Reviews
Review for Coping With Laryngomalacia, Inc, Port Monmouth, NJ, USA
At 8 weeks my little man was diagnosed with LM. He has always had problems breathing and eating. After I got the diagnosis I felt lost and didn't know where to turn. I found CWLs facebook page and I had a sense of relief come over me and I knew I was not alone. In late June 2013 we went in for another scope and they said M's LM is much more severe then they originally thought before because the first scope was unclear because his reflux was so severe. They scheduled us for a stat Supraglottoplasty on July 2nd. M had many complications after his surgery and it landed us in the PICU for 6 days. They sent him and I a care package for the procedure that made M have something to snuggle. I still get an email here and there asking how everything is going. I feel like I have tons of people behind me and a group that knows what I am going through. This organization has helped me in so many ways and I can not ever thank them enough.