My Nonprofit Reviews
Amber58
Review for Coping With Laryngomalacia, Inc, Belford, NJ, USA
I found CWL when my son was diagnosed with LM. I didn't know the first thing about this condition until I found this page. I could ask a question in the middle of the night and get an answer. His LM was so severe that he had to have a supraglottoplasty. We spent a week in Levines Children's Hospital and one night in PICU I know that may not sound like a long time but it felt like a lifetime to us. He is now wonderful but still struggles with LM daily and I can always turn to this page for support and advice. Also, after my pint sized powerhouse had surgery (since I didn't have a computer to sign him up before because we were in the hospital) he received a care package in the mail! With lots of goodies for both him and me! CWL has a special place in my heart and always will!