My Nonprofit Reviews

Nancy176 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits


130 profile views
1 reviews

Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA

Rating: 5 stars  

Cure AHC has helped our family tremendously! Our 6 year old son has been diagnosed with AHC 3 years ago, and Cure AHC has been a great help and comfort to families. It is reassuring to know what other parents and children are dealing with and the newest research for a cure on this disorder. Parents are able to communicate with others to research what works or doesn't. Triggers or how episodes affect our children . The newest research and duke university group all the work they do for our kids . Awareness and helping families deal with this rare disorder, has been a stepping stone in research and proving the best for our son to make his life the best it can be. It provides an outlet for parents to bounce off ideas and concepts that help with the care of our amazing hero children.

Role:  General Member of the Public