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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

My granddaughter was born with 1p36 deletion syndrome ( a genetic disorder) that this wonderful group is trying to educate the public and our politicians about. These kids need the same help that is offered to those children born with Down Syndrome , the issues are very similar and yet in most cases worse for the 1P36 kids .

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?


Role:  Client Served