My Nonprofit Reviews
Caroline27
113 profile views
1 reviews
Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA
My grandson has CdLS and as a result, the Foundation is critical to him and the family for information on the syndrome. It has provided us with education, referrals, and support every step of the way since his diagnosis when he was 5 months old. He is 6 years old now. His mother just returned from the national conference in California and was completely blown away by that experience. My son is hopeful that he will go next year with his son. I have learned so much from the wonderful people of the foundation, they are Always there for me.
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If I had to make changes to this organization, I would...
Have a satellite office closer to where I live. I know, I know, that sounds selfish of me doesn't it?
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014
Role: Client Served
